DHHS→ MeCDC→ Disease Prevention→ MCH→ CSHN→ Birth Defects Program→ Resources
Children with Special Health Needs
- Birth Defects Program
- Cleft Lip & Palate Program
- CMV
- Maine Newborn Hearing Program
- Newborn Bloodspot Screening Program
- Care Coordination
Other
Resources
Data
- NBDPN Annual Report- Birth Defects Data for participating US states (Maine's data starts with the 2010 report)
- Maine Tracking Network- This site provides data on 12 of the 22 specific birth defects that the Maine Birth Defects Program follows.
Educational/Informational Materials
The following websites are listed for your convenience. This is not all-inclusive, nor should it be considered an endorsement of the accuracy of, or support for, the information/views expressed in each site.
Folic Acid
- CDC - Folic Acid - Home page- A variety of educational and informational materials regarding folic acid.
Other
- National Birth Defects Month- A variety of educational materials can be found here.
Internet Resource Links
The following wesites are listed for your convenience. This is not all-inclusive, nor should it be considered an endorsement of the accuracy of, or support for, the information/views expressed in each site.
- Birth Defects - Centers for Disease Control and Prevention- This site has a range of information on Birth Defects including educational material.
- National Birth Defects Prevention Network- This site has a range of information on birth defects, prevention, educational material and other resources.
- Birth Defects Research for Children, Inc- Birth Defects Research for Children, Inc (BDRC) is a non-profit organization that provides parents and expectant parents with information about birth defects and support services for their children.
- March of Dimes- Information on the prevention of birth defects, premature birth and infant mortality.
Organizations:
The following websites are listed for your convenience. This is not all-inclusive, nor should it be considered an endorsement of the accuracy of, or support for, the information/views expressed in each site.
- Maine Down Syndrome Network- A network of families, professionals, and community members living in the state of Maine, who share the common goal of promoting awareness and acceptance of people with Down syndrome.
- National Down Syndrome Congress- A not-for-profit organization that promotes the interest of individuals with Down Syndrome and their families.
- Spina Bifida Association- National association that serves adults and children who live with the challenges of Spina Bifida.
